
****************
We don’t say terminal anymore, Janessa, my support group leader, says on one of our monthly Zoom calls. We say incurable. Because, you know, people can live a long time with this now. What doesn’t need to be said is that not all of us will.****************
In the months after I find out I have an incurable heart and lung disease, I spend a lot of time thinking about a man. All my journal entries mention him. I spend pages dissecting our FaceTime calls, the look he gives me when I say I have to go, his insistence that I call him right back, trying to mine for proof that he really loves me. That I am still lovable, despite this.*****************
When I met T, a few months before I got sick, I Googled his name. The first result was a missing person report from several years earlier, accompanied by a thumbnail photo of him smiling in a black sweatshirt. Last seen in the Pine Bluff area on October 31st, the caption said, anyone with information about his whereabouts please contact the Pine Bluff Police Department. I took a screenshot and sent it to my friend: is this a red flag*****************
The heat in my apartment went out for three days the winter I met him. It was as cold as a Minnesota February gets; I’d been sleeping in my heavy-duty down coat and two pairs of pants, creating a ring of space heaters around my bed. He lived an hour away, across the Wisconsin state line, but he told me he’d come lift my spirits and he did. It was snowing; we ate takeout tacos in bed, drank bubbly from the bottle, curled together under the covers watching The Sopranos on my broken laptop. My bedroom was all windows—nine of them—and I always said it would be the worst place to be if a tornado struck in the night. It was the best place to be when it snowed.*****************
T made it clear from the start that he was someone who could never be pinned down. The attraction was undeniable, but it was our conversations that thrilled me–a nonstop game of verbal ping pong. I remember thinking I could banter with him for the rest of my life and never get sick of it. At the end of a weekend together, I found a little baggy of mystery pills in the drawer of my nightstand—Valium, maybe, left there by another man—and offered them to him. He swallowed a handful all at once and left. A couple hours later he called me. I’m fucking floatingggg, he said. And that’s how I felt too. Like I was floating.*****************
T FaceTimes me from a hotel in Los Angeles. He FaceTimes me from a hotel outside of Ruston, Louisiana. He FaceTimes me while driving a Benz through Cherry Hill, New Jersey. In the wake of a breakup with another man, too sick to do much of anything, I’ve moved in with my retired parents. I answer his calls in my childhood bedroom with its teal walls that my sister and I painted when we were kids and our mom never painted back. I live my entire life between these walls now. You gotta get better, he says, so you can run around with me.*****************
Out of boredom I download a dating app, then delete, then redownload. I’m swiping past people who are doing everything I can’t do; looking for a woman who can be someone I’ll never be again. An adventure partner, a travel buddy, someone to hike the Pacific Crest Trail with. How do I tell them that the most adventurous thing I’ll ever do with them is meet them in person?*****************
I match with a cardiologist on one of the apps and when he messages me I say I wish my cardiologist looked as good as you and he says lol do you actually have one and I say yeah and he says oh dang do you have an arrhythmia or something and I say nah, pulmonary hypertension and he unmatches me. Relax, I want to say, it’s not contagious.*****************
I have to call an ambulance one afternoon in July, after the diagnosis but before the meds start working, because my heart is going berserk. 180 beats per minute and I’m struggling to breathe. Four EMTs show up to my parents’ house and one of them is the hottest man I’ve ever seen. In the back of the ambulance I accidentally flash my tits to all four of them while they’re hooking me up to the heart monitor. It’s SVT, one of them says to the others and then the hot one hands me a syringe and tells me to blow into it. We’re gonna go fast, the driver says, turning on the siren as we bolt through the streets of Saint Paul and I’m on a stretcher, blowing into the syringe, over and over, and the hot one tells me I’m doing great and squeezes my hand and I’m thinking am I going to die in the back of this ambulance and I’m thinking this is the most humiliating moment of my entire life and I’m thinking I wonder if he’s single.*****************
When I tell the men from the apps that I have pulmonary hypertension, after a perfunctory that sucks, I’m sorry their responses depend on whether or not they’ve heard of the disease. If they have, and they know a little bit about it, they invariably ask if I take Viagra (yes, three times a day) and if it you know…does anything (no, not in women). If they don’t know anything and I explain that it’s a pretty debilitating heart disease, they want to know if I can still engage in, um, activities (maybe, not with you).*****************
I read a New York Times article about dating with chronic illness and then I read all 277 comments. I’m looking for recognition, some confirmation that I’m not alone. In the midst of people proclaiming that essential oils cured their husband’s chronic Lyme and others arguing over the right time to reveal a disability, a woman with a rare blood cancer shares a story about a date she went on. When she mentioned to her date that sex was risky because an infection could kill her, he was convinced she was exaggerating. He told me he felt so sorry for me that sex could prove problematic, but never mentioned that he felt sorry for me because I had terminal cancer...it soon became apparent that he would rather have incurable cancer than not be able to have sex.*****************
I wonder if it’s best to play my cards up front, to let them know what they’re getting into before we even match. In my bio I write I have a terminal illness, looking for my A Walk To Remember arc. Then I wonder if this defeats the purpose; anyone who's seen it knows that in that movie Mandy Moore’s character doesn’t reveal she has leukemia until the boy has already professed his love for her.*****************
Over text, T and I reminisce about the bad emo music of our youth. He was a star football player in his small Louisiana town, I was a bookish Catholic school girl, shivering in my uniform skirt through long Midwestern winters, but our short-lived emo phases somehow synced up. Remember this one? He sends me a voice note, serenading me, screeching the words to Your Guardian Angel by The Red Jumpsuit Apparatus: I will never let you fall / I’ll stand up with you foreverrr / I’ll be there with you through it allllll*****************
We all have our baggage, my therapist tells me. I don’t think it makes you undateable. I’ve put on makeup, for the first time in weeks, to meet her in the portal. She starts talking at length about her husband’s struggle with addiction, about how you never really know what you’re getting into with someone anyway, because things change. I look past her, fixating on the unmade bed in the corner of her screen. If you don’t know, you don’t know, but if you do know, you can avoid it, right?*****************
I ask the girls in my support group what they do about dating. A lot of them are married and I secretly resent them, but a few of them are single. I don’t, K says with a laugh. She’s the one I relate with most: we’re both in our early 30s, both had to move back in with our parents, both got broken up with by our boyfriends when we got too sick. Maybe it’s possible to have a partner that sticks it out with you, if they love you enough, but getting someone to sign up for this, well, it’s just a whole different thing. Everyone agrees.*****************
T slipped out of my life as quickly as he slid into it, that first winter. By the time I heard from him again I had a new boyfriend and a mystery illness. I told him about both. Our friendship rekindled, but I kept him at an arm’s length, trying to dim the switch on that light that came on inside me whenever we talked. He was moving out east soon and wanted to see me before he left. I said no, I can’t, I’m with someone. When I started to feel the cracks in my relationship deepen, I told him that too. I don’t think he loves me, I said. Well I love you, he replied.*****************
In the aftermath of my diagnosis, I tell T that it’s been proven that women who become seriously ill are more likely to be left by their male partners than the other way around. That’s bullshit, he says, most divorces are filed by women. Not in this specific scenario, I say. Men don’t like to be caregivers. I sent him a link to an article about it; there's a picture of the baseball player Albert Pujols, who left his wife after she had brain surgery. That doesn’t count because he’s famous, he says. I say okay and send him another article about women with terminal cancer being left by their partners. You don’t have no cancer man, he says.*****************
Months earlier, while still searching for answers, I read Meghan O’Rourke’s The Invisible Kingdom, which chronicles her own diagnostic journey with a complex chronic illness. She talked about the shame, as an ill person, of needing other people so much, both in concrete, material ways, and in the need for recognition. I felt a profound sense of betrayal that he did not seem to feel the urgency of my suffering, she wrote of her husband, who rarely accompanied her to doctors’ appointments. It is hard to be the partner of someone ill, at once close to the problem and permanently on the other side of the glass from it. I read these words at night, next to my boyfriend, B, who was trying to understand, but who would always be on the other side of the glass.*****************
A month and a half before I got diagnosed, when I was too weak to walk up the stairs to my apartment and didn’t know why yet, B dumped me. It sounds bad, to say it like that, because by then I didn’t blame him. It was my idea. I could tell he felt trapped but was afraid to abandon me, so I gave him permission to and he took it. I was already sick when we met a year earlier and had spent a good chunk of our year together searching for answers—in the fluorescent light of dozens of exam rooms, in the test results tab of my MyChart app, in the archives of niche Reddit forums. Our whole relationship felt like a series of things I wanted to do, but couldn’t, while he hung around on the sidelines of my pain feeling helpless. We might have been right for each other if we’d met under different circumstances, if I’d gotten better instead of worse. But we didn’t, I didn’t. I was heartbroken for a week, and then I was too sick to care.*****************
In the week between when we decided to break up and when he moved all of his things out of my place, we had sex one last time. For closure. The whole time I wondered if it would be the last time I ever would.*****************
The thing that nobody warns you about having a heart disease is that it makes it impossible to **** ***, I tweet. I consider bringing this up with my cardiologist, but decide I would rather die horny than tell a 75-year-old man what my heart does when I get aroused.*****************
A popular Instagram fashion brand is advertising a tiny brass pill canister embossed with the word Viagra. The algorithm shows it to me over and over until eventually I buy it. Beautiful women take Viagra has become my little motto, my bit with friends and family whenever I pop one in their presence. If I’m going to be taking it for the rest of my life, I might as well own it.*****************
T tells me that before we can have sex again he needs to see me run a mile. Or do a power clean. Your choice, he says, but I’d go with the mile. Less blood pressure action. I know he’s joking, but I know there’s a deeper part of him that’s a little serious. Okay coach, I say. I don’t want to tell him that these things still feel so out of reach.*****************
Maybe, I think, the reason T is so important to me is because he was the last person to meet me when I was still healthy, the last person who would ever get to know the version of me that could pop a bottle of champagne after midnight and drink the rest on a lazy Saturday morning, the version with energy and verve and dreams for the future, that could plan a trip to Palm Springs on a whim, that didn’t have to take supplemental oxygen on the plane, that didn’t have to take pills four times a day just to stay alive. The version that could get high without sending my heart into overdrive, that could fuck without sending my heart into overdrive. That could do a power clean, or run a mile, and not think twice about it.*****************
By late August, the meds are starting to work. I can go on walks again, slowly, in the sticky heat. Senator Amy Klobuchar tweets a picture of herself at the Minnesota State Fair, posing with four shirtless firefighters. State Fair pro tip: You don’t want to miss the Minnesota firefighters. The post has millions of views. One of the men in the picture is my EMT, the hot one. I send it to my group chat and nobody can agree who the hot one is. I think it’s obvious.*****************
In the fall, I suggest to T that he visit me. I haven’t seen him in well over a year, but lately we’ve been talking all the time. He hems and haws and eventually gives me a half-hearted excuse about feeling as if I’m only talking to him because I’m bored, because of my situation, and that if my life hadn’t slowed down like this I wouldn’t even look his way anymore. I can see through it, and I press him, until eventually he admits that my lack of mobility isn’t compatible with his lifestyle of spontaneity and constant travel, that we could never be together because of it. I’m gutted, angry, ashamed. Most of all, as much as I want to believe he’s wrong, to change his mind, I know there’s some truth to his words.*****************
T was there; when I knew I was sick but everyone else was starting to suspect I might just be crazy, he had a plan for me, an investment in my recovery. Stop eating this, start eating this, everything from scratch, spring water only. You don’t have room to slack, he told me. I rolled my eyes. Deep down, though, I was grateful that someone cared enough to want to help, to not just shrug their shoulders like my doctors had been doing for months. And when my MRI report said myocardial fibrosis and right ventricular hypertrophy and I landed in the hospital, when I lied flat on an operating table with a catheter in my heart and saw the grave expressions on my doctors’ faces, when he texted me how did today go lil mama, when he called me immediately after I told him, when he looked like he might cry on my phone screen, I felt it. But there’s a limit, I’m learning, to what some people can bear.*****************
I long for a love that is not contingent on how well my body is working, one that understands how this illness makes both spontaneity and planning ahead more difficult, that celebrates the wins and grieves the losses alongside me. In one of my pulmonary hypertension groups, a man is posting updates about his wife’s double lung transplant recovery. She’s up walking today! or Well, we had a bit of a setback. I wonder about my future, if I’ll ever need one. I wonder what it would be like to go through it alone.
Silencio, our guide whispered.
Just then, we were ambushed by hundreds of orange bursts, swirling and darting in every direction, while thousands more blossomed in the pine branches overhead. The sound of their powder-thin wings fluttering so close to my ears tickled the back of my neck, like angel whispers. I raised my shoulders and giggled.
Adult Monarchs normally live three to four weeks, but the ones that migrate south are part of a special generation born towards the end of summer, called the Methuselah. They live seven or eight months—about nine times longer than the average lifetime.
Imagine living for 700 years.
The butterflies, like us, had started their 3,000-mile journey from the United States to Mexico four months prior. In my mind, we were an inter-species diaspora, escaping harsh conditions. Unlike us, however, the Monarchs would only stay until March when they and their progeny returned north, whereas Tree and I would continue onward in our van to Patagonia. We’d lost nearly everything in the Recession—my fancy sales job, Tree’s investment property, our ability to pay rent and stay solvent. Forced to live in our van to make ends meet, we decided to head south of the border where our dollars would go further, and there was less shame in being poor.
Standing in that storm of endangered butterflies ten years ago, Tree and I felt alone in our failures. But the truth is, we were legion; a whole generation in distress. And, now, I’ve read that researchers at Pew are already wondering whether the coronavirus pandemic will become to Gen Z—our daughter’s generation—what the Great Recession was to us, by which they mean a festering wound that hobbles their start in a ruthless race.
Yet, isn’t what’s coming so much more devastating than that?
On March 14th, we suddenly found ourselves locked-down with our seven-year old daughter in an apartment on Tenerife, a small Spanish island off the coast of Africa. Within days, she began experiencing night terrors—anxious manifestations from not being allowed outside.
“Mama! Mama!” she shrieked, night after night, thrashing wildly with her eyes open. I rushed into her room to help, to hold her, to tell her it was all going to be alright but, stuck in liminal consciousness, she couldn’t hear or see me. She kicked and screamed and choked, her voice strangled in the fight against an unseen monster.
Even now, on our walks through the city, the invisible boogieman hides on hard surfaces and floats in the air.
“Stop touching your mask,” I gently scold.
Unbeknownst to my daughter, the baby of Gen Z, a million people worldwide have already died of the virus while the U.N. warns that the number of people dying from hunger could double this year from the financial fallout of confinement. The boogeyman has presented grownups with a horrifying dilemma: keep the economy open at the risk of spreading disease or keep the economy closed at the risk of mass starvation.
Again, I’m reminded of the Monarchs.
Like the Methuselah who journey far to breed in the sanctuaries of the south, my husband and I are raising our daughter abroad where we can afford to give her a better start in life. Geographic arbitrage, it’s called. And, yet, the Monarch’s path has been overbuilt, sprayed with Roundup and stripped of milkweed, just as my daughter’s path has been paved with crisis. There is no escape; fancy terms be damned. In fact, if we could take the long-view of the biblical Methuselah who lived 969 years, we’d see that this current rupture of our “normal” lives is only a preamble for the Second Coming, Yeats' infamous “rough beast” slouching towards Bethlehem to be born: the global food shortages, the mass migrations, the devil that scientists under the current administration are forbidden to name. We talk of “flattening the curve” while the Keeling Curve, the graph that shows the ongoing change in the concentration of carbon dioxide in the Earth’s atmosphere, continues to rise.
As the Earth gets hotter, conditions favor the spread of infectious disease and the start of new pandemics.
Imagine going extinct.
Over the past 20 years, there’s been an 80 percent total decline in the North American Monarch population. As they teeter on the edge of an extinction tipping point—in which numbers drop too low for the species to recover—scientists warn that habitat loss and human-caused climate change are to blame. In fact, as many as three-quarters of animal species could be extinct within several human lifetimes, imperiling the very systems that keep people alive.
Holding these thoughts fills me with dread. Like my child, I, too, wake terrorized in the middle of the night, strangled by an invisible monster. If this pandemic has laid bare one thing, it’s that we’ve yoked our survival to the survival of the economy—and this economy will kill us all. How will we Houdini our way out of this existential double-bind?
To anyone paying attention, the answer is obvious: we need systemic change. Super-size-me, carbon-based capitalism isn’t working. So, maybe what I mean to ask is, by what sorcery will we extricate ourselves from this corporate chokehold to do what’s necessary and right by our children before it’s too fucking late?
The curve is rising.
In the mornings, before we begin our new normal of homeschool and Zoom calls, my daughter sits on her bedroom floor, surrounded by sticks, an empty wine box, and a hot glue gun. When lockdown began, she started mining our recycling bin daily to create something—a three-foot tall sled-dog, an extended family of dragons, a pregnant fairy with a peg leg (the obvious favorite)—from our waste. An alchemist in her underwear, she turns what was base and broken into gold.
“What are you making this time?” I ask.
“A birdhouse. I’m going to put it on the balcony so I can adopt a little bird but not put her inside a cage, because that makes me sad. Birds should be free,” she explains, without a hint of irony.
Imagine a sustainable future.
I used to get these pangs of want, filled with unnamable desires. You would find me jumping. You would find me erratic. I want to make something. I want to dance with somebody… I want to feel the heat with somebody… yeah... With somebody who loves me. Я хочу. I want… I want… I want… I don’t know… I want… If you were that stranger at the bar you would ask me, “How do you have so much energy?” and I would say, “I don’t know,” and then jeté away.
Now I’m drained, all my juice is gone. Instead of yelling at people to, “Wake up!” I’m alone in a desert of darkness, amputated, stuck on scalding asphalt, bleeding as I push myself forward by my stumps one inch at a time into a never-ending nightmare. Nobody’s home inside me. My voice is deeper and flatter, allowing my new apartment-mate to clock me as trans:
New Apartment Mate: Can I ask you a question?
Allie Zenwirth: Sure
New Apartment mate: Your voice is very thick
Allie Zenwirth:
New Apartment Mate: (winks, gives thumbs up)
I am in a manhole of wanting to die. The lid standing between me and the street weighs 249 lbs (as manhole covers are wont).
My therapist points out that my suicidality is reasonable.* That makes me feel better.
*he phrases it differently.
In the beginning of 2020, Corona Time, New York was the epicenter. I stayed with my Russian professor in Yonkers for a month, and during one particular dinner, as I talked everyone’s heads off about the Community, I got a text.
Father: How are you feeling?
I announced: “Guess who just texted me?” I consumed everyone. “That’s a weird text, right? The first time in months: ‘How are you feeling?’ How should I respond?”
From my father’s perspective, a concern regarding my health was reasonable. About half of the Chasidic community was infected by the virus. He was. My mom was. His brothers were. My mom’s siblings were.
I had a follow up call with my father who said he’ll call me back, but he never did. However, the virus gave my mom an excuse to talk with me again. We hadn’t spoken in a year.
For a while, her disembodied voice was a grounding presence. She was someone to talk to when I moved back to my room in Jersey City. A windowless basement room in which I couldn’t stand upright, without A/C, and infested with both cockroaches and ants. Housing-wise, things improved when I paid the extra $150 and moved up to the second floor. I was still unemployed, alone, without many friends.
Throughout my years at Sarah Lawrence College, I would be on the verge of homelessness during the winter breaks when the campus closed, relying on the kindness of strangers. During the break my senior year, January of 2019, I called my mother, asking her if she wanted to get together. Just like the year before, she asked if she could think about it and call me back. After three days, she decided she would be down to meet, but just like the year before, it would need to be in secret. We discussed our options and my mom determined it would be as if we were to have an affair. We would book a hotel room.
The following Wednesday morning, after eating two egg and cheese English Muffins I had gotten from Dunkin’ the night before, I looked out the window of a room in Hotel Le Blu and watched as a woman approached the hotel. She had gained weight. As usual she was wearing body-covering dark-colored clothing and false hair.
My mother entered the hotel and came up the elevator. I found her in the hallway, looking lost. I hugged her as if she were a pillow. Going into the room she put down her bags of Greek yogurt for herself and homemade cookies for me and we sat down on chairs facing each other. She got straight down to what she wanted to tell me.
Mom: I love you.
Me: I love you too.
Mom: I like talking with you on the phone.
Me: I like talking with you too.
Mom: I know you are well intentioned, but you writing a memoir has been incredibly hurtful to me. I know you think you’re doing it for the right reasons, but I don’t think it’s ok that you expect me to keep talking with you.
Me: Is it because I am writing about you? I could use a pseudonym.
Mom: Being written about is part of it. You know I’m a private person.
Me: (nods unsure)
Mom: But...
The real problem? I would be writing negatively about the Community.
Talking with my mother in the bowels of my basement room was not all bliss. We would argue in almost hour-long bursts. Strangers would look at me strangely as I broke the silence of the night, making laps around my neighborhood, raising my voice in vehemence. She argued that I wasn’t Paul Revere rousing the colonials, that my memoir was not whistleblowing, that I was sharing with the world a warped version of the Chasidic Community, one driven by hatred and personal grievance.
I argued that the Chasidic Community was a place where human rights were being violated.
In August of 2020, when my mother recruited an aunt and an uncle to help refute my claims, when three people telling me that my experience in the Community was my own fault* became too much, I told my mother so. I told her we could continue to speak but I will not be gaslighted. She stopped calling me.
*My mother will laugh. How predictable: another conversation that I warp and misconstrue. What else is new?
So now here I am in September of 2020, isolated, with a deadness all too familiar. My feelings blend with those of my still-in-Community-self, the mirage of pain I left behind in 2016, when I escaped. An experience I hoped would never return.
In 2011, when I was thirteen, I would sit beside Halberstam, a rabbi who was also a therapist, in the uncomfortable chair besides his desk, waiting. The darkness that had surrounded me since the age of five had turned into a throbbing pain. I was waiting for Halberstam to tell me why. To prescribe me some Advil.
Like a pediatrician walking into a room saying, “Hi, how are you doing?” who would hear a few symptoms then confidently declare, “So here is what I’m going to do,” Halberstam found the problem: it was my parents. They had been putting “interjections” in my brain, programming me to believe that I deserved to be miserable. He implied that I was abused. I had never liked my parents, but I never realized their terribleness. “Oh boy, poor me.”
Halberstam’s abuse theory was not based on anything I said. I found out later that my mother had been seeing him as a patient as well. He must have based it on what my mother told him during her therapy. Something real. Unwilling and unable to tell me the truth, he turned it into something vague, which turned into “my parents are abusing me.” He didn’t bother to check in and see if that was my lived experience. He didn’t bother to check in and see if that was what made me unable to see anything but bleakness.
In 2014, after my second hospitalization in a psych ward, at sixteen, my mother and I became friends. Prison inmates. My mother shared that she never wanted me to be born. I was grateful she told me as it meant I wasn’t making things up. For a while, that was all that was mentioned of it. Then, in 2020, during the few months we resumed talking, my mother added that she didn’t want to get married either. She described her increasing dread as the wedding date had drawn nearer.
In 2020, when we would be on the phone, I argued that the Community was to blame for her marriage and my birth. The Community made her get married to someone she didn’t know at 18, and made her pump out one kid after the other. But in her mind the fault was her own. She could have decided not to get married and be ostracized. She chose to get married because deep down she wanted to. “We all need connection.” She could have gone on birth control even though she wasn’t allowed to without permission from a judge. She chose to have kids to prove to the world that you can have kids and not love them.
Sister Cathleen (Margaret Qualley) is a novice in training at a nunnery in Novitiate (2017). She is intimacy repressed to the extent that she can’t bear hearing the object of her desire, Sister Emmanuelle (Rebecca Dyan), read the bible. One night, Sister Emmanuelle wakes up to a knock on her door. She opens it a crack.
Sister Emmanuelle: (whispers) You can’t be here
Sister Cathleen: (inaudible pleading)
Sister Emmanuelle: Okay
They both sit down on the bed nervous. LONG pause.
Sister Cathleen: Do you remember… Do you remember when you asked what I was starving for? I just want to be comforted… please will you just comfort me… please… please will you just… please will you just… please I just want to be comforted… please will you just comfort me... Please… Please… Please… Please will you just comfort me… Please will you just comfort me…
Unable to shut up until she is held, kissed, smothered, and eaten.
I feel that.
We sit in the van parked on the railroad tracks not knowing if the train is coming, or if you are going. You want to die. You said so and we believe you. Momma cries out, “Bill, please,” over and over and we wait, inhale then hold, for you to decide.
It was always like that. Random moments of drama; life or death, on the side of the road. That time in Texas in the middle of the worst blizzard in thirty years. The truck’s engine exploded and we were stuck, freezing, as semis whooshed past on the highway and the truck rocked in the aftertow. ‘Bill, please,” she pleaded as the baby cried in her lap and we huddled in the back of the cab, fingers crackling in the cold.
The FBI mailed out wanted posters. Later, when I finally got the files: thick black lines redacting my childhood alongside the names of the agents who’d tracked you. I found facsimiles of your face, eyes front, turned to the left, turned to the right, and your aliases, pages and pages of them. You were always a good storyteller, a natural whipsaw with a lie.
There were pills and booze and cons. And days when you could hardly get out of the bed in whatever cheap motel and whatever cheap town we’d drifted to, and Momma had to scratch out breakfast, lunch and dinner for us on the $10 she had hidden in her wallet.
There were joys. You driving us through the looming hush of the redwoods of northern California, explaining how the dinosaurs scratched their bellies against the Cretaceous bark. Or the sound of your cowboy boots crunching on the gravel as we followed you to the edge of a cliff in the Cherokee National Forest, your smile wide as the vista over the valley below.
The melancholy of Willie Nelson singing about angels flying too close and your voice, melodic and on key, despondent as a star in an empty universe.
I can still smell the smoke from your Winston King trailing out the open window as we children slept folded against each other like paper bags. The infinite hours, days, weeks, months and years we cruised I-10, each mile bringing us closer to, or taking us further away from, what you couldn’t face.
Then the time in Vegas when you disappeared for two or maybe three days, I can’t remember. We ate cereal and milk and watched endless episodes of Knight Rider and Three’s Company on the small, staticky TV in the motel room. We knew you’d come back. We hoped you’d come back rich or at least with enough money to buy food.
You almost died in Arkansas.
Why do they call it that? I always think of the ark of the Covenant and the followers of Moses. Here are some rules to follow: Never tell anyone your real name (I didn’t know mine until I was nine years old.) Help your mother take care of the little ones. Always stay close in case we have to leave in a hurry. Don’t sass your father or you’ll get a slap. One day when I’m gone, you’ll be sorry.
I’m sorry, Daddy.
The heart attack came on so swiftly that your face turned blue with the pain, and your eyes, already bulging, bugged out and scared us all. The nitroglycerin pills weren’t working and Momma called the ambulance and they took forever to come. Seven children left behind in the motel room, too terrified to talk, hungry and squabbling over the television because at least that was something we could control. They airlifted you to Tulsa and Momma said there would be an operation. They would slit open your heart, chip away at the blockages the way miners dig for gold.
But in the night you stripped the IV from your arm, ripped out the catheter, painting the ICU floor and walls with your blood until they called security and Momma, and she flew to the hospital with your clothes and boots. We woke up in the morning with you in the bed, in the motel room, smoking, your skin like drain water after a fierce storm. We knew nothing and yet understood that everything, everything, was wrong.
You said you dreamed you would die on that table, an open heart at 5am and so you kept it closed. The doctor yelled after you that you wouldn’t live to see tomorrow. 365 tomorrows are what you got instead.
After that you wouldn’t leave the South but circled in a meandering loop between Florida, Georgia and Alabama, between your parents, her parents and other relatives. Life being relative, we knew by then. We stayed close to ‘home’ in case something happened.
Only you were our home, the blazing, burning sun of our universe and when you collapsed finally, sinking in upon yourself, the morphine dimming the light in your eyes, the doctor shaking his head slowly from the doorway, our world went dark. And like planets long orbiting a dying star, we were freed to float away, off into the silent, empty universe, or to collapse ourselves into the hole at the center of the world.