
A dog’s name should ring out when shouted. “Ken-tuck-yyyyyyyyyy!” I hollered from the back door, “Ken-tuck-yyyyyyyy!” I liked the way it sounded in the wind across the field. Yep, I thought, he would come to that.
***
My mother, her boyfriend Sonny, and I had just moved into an old farmhouse. It sat in the middle of a field at the edge of a trailer park down the gravel road from a lake, just north of the invisible line separating North Carolina from Virginia. They chose Virginia because that’s where Sonny’s three best friends had decided to start a business together, and they were cutting him in. They were dental techs–the fancy word for people who make false teeth–and running your own studio was the only way to make actual money in that profession back then. We were poor, so we moved.As we drove out of North Carolina and into Virginia, my mom pointed out countless road signs that told us Virginia was for lovers. I whispered Virginia is for lovers over and over again like an incantation under my breath–all the way until we made it to the new house. Maybe if I said it enough times, it might actually come true, I thought. Maybe we could really love each other there. And we did. Our Kerr Lake year was the happiest of my life. The house was old. The roof was a rusty blue tin that sounded like needles when it rained. The downstairs floor was made of shellacked brick that stayed cool all year long. Mine was the only bedroom. It was downstairs next to the kitchen, and my mom and Sonny slept upstairs in a small loft. The kitchen was tiny, with a half-sized oven, two burners, and a built-in griddle top. There was a fireplace, but there was no insulation. It was perfect.***
Me, Kentucky, the boots, and the romper were inseparable. So inseparable that, even after days of wear, my mom would have to wait until I was asleep to take the romper from me and put it in the wash. When I’d awaken and realize it was gone, I’d be totally inconsolable while waiting for it to dry. I’d end up wearing that thing for years, only abandoning it once it started giving me a permanent wedgie that no amount of slumping could disguise. Just a few days after Christmas I came home from school and my mom was acting weird–extra nice–when she greeted me at the door. I noticed a swing inside, hanging from the eaves. It was made from two long ropes and a flat piece of wood, shellacked just like the brick floor. I wondered where it came from and why it was inside.“Do you want to, maybe, swing on it?” my mom asked playfully as she gestured toward it.Of COURSE I wanted to swing on it! I was the only kid I knew to have a swing INSIDE the house, and I couldn’t wait to brag about it to everybody at school.“Where did it come from!?” I asked.“Sonny made this for you.”“Really? Why?” I was suspicious considering Christmas had already passed.“Because he loves you.” She pushed me on the swing, high into the air, in the middle of the house. I pumped my legs, but the whole thing felt strange. Like a trap. And I wondered if I’d get punished later even though the whole thing had been her idea.“Hey,” she continued, “What would you think about Sonny becoming your dad?”I stopped swinging my legs. “But I already have a dad.”“Well,” she pushed, “What if Sonny were your dad instead?”“How does that work?”“Sonny would sign some papers saying he wants to be your dad, and after, your birth certificate would show his name instead of Mark’s.” “Will he want me to call him ‘Dad?’” I asked. I had never even called my birth father ‘Dad.’ I called him by his first name, Mark. I wasn’t sure how I felt about the word.“I’m sure,” my mother responded.I thought back to the last time I’d seen Mark. It had been a few months—our final visit together before we moved to Virginia—and as my mom drove us away, he cried, “Ryan! Ryan! Don’t go!” His arms were outstretched, but he ran slowly. Even at that age, I could tell the difference between acting and sincerity, and he wasn’t trying hard enough to fool me. But it didn’t matter. Just hearing the words felt good. I didn’t care that they weren’t real. But then I remembered how my mom told me that when I was a baby and she had to leave for work, Mark would place me, screaming, in front of the window facing the driveway so she’d feel guilty as she pulled away. I didn’t know what to think. I felt the swing hard beneath me. I felt the boots snug on my feet. The gingham, scratching against my soft skin. I watched Kentucky, asleep on the sofa facing the back window. I liked this life–this house, this place, how we were together–and I wanted to keep it. So I said yes, and wondered when I was supposed to start calling Sonny "Dad."***
My mom loved creative types but craved the stability of a solid career. The two didn’t usually go together but Sonny seemed to fit the bill. They were in their mid-twenties when they met at a houseparty. Sonny’s band was playing, and his stage presence caught her attention. Learning that he also had a career got her hooked. To earn a living, he’d found a trade where he could make use of his creativity–one where his skills in porcelain and carving and color theory set him apart. Back then in the early 90’s, before advanced computer software and 3D printers, dental techs had to be artisans–each tooth a tiny, nuanced sculpture that you had to get just right. It wasn’t the best job in the world but it was enough, and it was steady, and so was he. Once Sonny entered our lives, we were safe, we had a regular place to live, and for the first time, I felt a sense of belonging and possibility that dissolved the anxieties our former conditions had produced.***
January was really cold. The grass crunched underfoot. ‘Tucky played in the snow. I had started visiting a neighbor when I got bored–the woman living in the house across the field from ours. She managed the trailer park down the gravel road and I’d stop by to help her move rocks around. Something about creating sections for her garden.One day she told me how, when mama birds were really desperate, they would build their nest right on top of another family’s. They were willing to kill, she explained, to give their babies a safe place to hatch. I didn’t believe it. But then she opened a birdhouse and showed me two nests, one stacked on top of the other. She lifted the top one so I could peek between the layers and, sure enough, the bottom nest was filled with brittle, unhatched, abandoned eggs. I thought about the mama bird. I wondered if she’d ever gotten over it.***
Winter turned to Spring and all the conversations I overheard in the house centered around wedding planning. Late at night when I should have been sleeping, I’d press my ear to the crack at the bottom of my bedroom door and hope to hear my mom and Sonny talking about it. I’m not sure what I thought I’d learn but I distinctly remember wondering when the whole dad switch was going to happen and if it would coincide with the wedding. Maybe it had already happened. I didn’t know how these things worked. I was looking for clues.One night I heard them argue. Sonny’s business partners had decided to cut him out of the business, but they had already agreed to be his groomsmen. They could afford to keep him on as a part-time employee for a little while, but he would have to find a new job soon. How would they pay for the wedding? What would he do? Where would we live? My mom was furious and said he should uninvite them, but he said no. Spring turned to Summer, and Sonny married my mom in the backyard underneath the big oak tree. It was beautiful. My mother wore a faded rose silk antique dress she had found at a thrift store. The sleeves were puffy, the skirt was full, and it seemed to have a hundred pearl buttons going up the back. She couldn’t reach them herself, so she had to be buttoned in and unbuttoned by somebody else. It was probably a young girl’s cotillion dress at one time. I was the flower girl. I walked down the aisle first after Sonny, and stood beside him waiting for my mom. Sonny was fairly tall–about six feet–and stayed tan all year long. He was fit in a casual kind of way, with greenish hazel eyes, and had a tidy, permed, chestnut mullet. I’d never seen him this dressed up before and he looked funny in his tux, like he didn’t belong in there.My mom came down the aisle next and she looked like a goddamned angel. There had been a light drizzle that morning–a sign of good fortune, everyone said–and the whole world glowed. The sun streamed down softly from behind the clouds and created a halo behind her. I didn’t recognize either of them, looking so adult and dressed up and respectable. The couple said their vows, and Sonny gave my mother a gold wedding band that he had made. They kissed, everyone clapped, and then Sonny turned to me. He pulled another ring out of his jacket pocket and got down on my level. He took my little gloved hand, put a tiny gold ring on one of my little gloved fingers, and said something like, “I’m yours for life, too.” I cried. His groomsmen weeped. And the bridesmaids swooned. Sonny was a good, good man.***
Sonny couldn’t find work after all, so not long after the wedding, we had to move back to North Carolina. My mom’s drinking picked up again and she began getting jealous of how much time Sonny and I spent together. One night when she was drinking and just the two of us were watching T.V. in the den, she looked over at me and said, “You know, the only way a new person can adopt you is if the other one agrees to give you up.”“Your father,” she said, “owed a lot of child support. So I told him that if he gave me a computer, and signed you over to Sonny, I’d agree not to sue.”She laughed, “Can you believe that!?” and then went to bed.I turned off the T.V. and walked to the guest room where we kept our IBM. This room would become a nursery just two years later but, for now, the only person using it was Sonny. He’d get high and then spend hours alone with the door closed, creating portraits of Jerry Garcia in Microsoft Paint. I looked at the computer and wondered how much it weighed. How much it was worth. I called Mark to ask but he did not answer. I went into the garage where ‘Tucky lived and cuddled him for a while in his dog bed before going to my room.***
A couple years passed, my mom was pregnant with my sister, and the guest room had become a nursery. It was a Friday and she unexpectedly picked me up early from school. We suddenly needed to go visit Sonny’s mom a few hours away in the mountains, but she didn’t say why. We’d need to stay a couple nights to make the trip worth it but, unlike previous trips, we couldn’t afford to pay someone to watch Kentucky. With a new child on the way, my mother was worried about money, so instead of boarding him or hiring someone to watch him, she put Kentucky on a chain behind the house. She filled bowls with food and water. I cried and begged her not to. The chain wasn’t very long and I was worried. Other neighbors let their dogs roam around and they weren’t very nice. What if they picked on him and he couldn’t get away? She laughed off my concern and promised that he would be fine.While my parents packed, I walked door to door begging neighbors, tearfully, to keep Kentucky while we were gone. I had a terrible feeling that something bad would happen while he was out there by himself and even asked people I’d never met before. I was desperate. But they all said no. I insisted my mom let me stay home alone with him that weekend, but I was eight and that wasn’t allowed. I refused to pack a bag, so my mom did it for me. She forced me into the car and promised to punish me for being insolent when we returned home from the trip. I didn’t care. I was devastated. I couldn’t stand the thought of ‘Tucky thinking I’d left him. My mom put the car in reverse and began backing away from the house. Everything around me went in slow motion, while everything inside me raced. My stomach churned, my heart beat out of my chest, and big, hot, tears flowed down my cheeks. I watched from the back window as we drove away and strained to see ‘Tucky from the road, but I couldn’t.When we returned home from the weekend, I ran out of the car as fast as I could. I didn’t understand what I was seeing at first. Bowls of food knocked over. A chain lying limp in the grass. Kentucky, nowhere to be seen. I made the same neighborhood loop, knocking on every door, asking all the neighbors if they’d seen him, but nobody had. I walked home slowly, then stood outside in the backyard until long after the sky had turned black and the lone street light had turned on. I looked toward the tree line and called, “Ken-tuck-yyyyyyyyyy! Ken-tuck-yyyyyyyyyy!” But he didn’t come.***
I made flyers on the computer. I didn’t know how to get ‘Tucky’s photo on them, though, so I used clip art to search for a dog that looked something like him, then described him in detail. I added our phone number and said, “PLEASE CALL!” in really big, bold letters. I didn’t have any reward money to offer, so instead, I promised to do chores for anybody who could point to his whereabouts. I printed them out and put them in all the mailboxes around the neighborhood. When nobody was looking, I peered into windows and fenced-in backyards, hoping to see that Kentucky was stolen rather than lost. After getting the fliers, one of the neighborhood kids called to tell me they’d seen him floating in the pond across from my house. Another called to say her father had shot him while hunting in the woods. I was afraid to go into the woods after that. And afraid to look at the pond. I tried not to fall asleep because I had started having a nightmare.In this recurring dream, I’d be lying in the bathtub with my eyes closed and the water would feel, suddenly, full of fur. I’d open my eyes and ‘Tucky’s skin would be on top of me in the tub, empty and flat as a bearskin rug. I’d try to scream, but when I opened my mouth, the fur pushed inside me and no sound came out. I had insomnia at night and was riddled with anxiety during the day. I was a wreck and eventually, had to move on. I stopped looking, but sometimes I’d still go into the yard late at night and call his name, just in case–“Ken-tuck-yyyyyyyyyy! Ken-tuck-yyyyyyyyyy!”–but he didn’t come. And he never came again.***
Time wore on. My sister was born, we moved again, and I, eventually, moved out. Then, in my early twenties, my mom and Sonny got divorced. Nobody told me at first, but I had stopped hearing from him and his family and I started to wonder. My little sister eventually broke the news, right before Christmas. I guess everybody just thought I wouldn’t notice and they could avoid the subject altogether. My sister–his biological daughter–still got presents from Sonny’s parents that year. I did not. And, just like that, I heard Sonny had a new girlfriend with two boys, and I got this sinking feeling that he had decided not to be my father anymore.***
By the time I was in my mid-twenties, I hadn’t spoken to Mark, my biological father, in over twenty years. My sister was a teenaged heroin addict, I was an alcoholic, and I had dropped out of school. I was estranged from my mother and hadn’t heard from Sonny for the better part of a year. I wanted to preserve the relationship with him–I needed to preserve the relationship–so I called him, crying, drunk, and begged him to keep being my dad. “You’re the only dad I’ll ever have!” I argued, “You are my one shot at this! I don’t get another chance to be a daughter! Can’t you just pretend that I come to mind, even if I don’t? Can’t you just lie to me?” I bargained, “All you have to do is put a monthly repeating call reminder in your calendar and then you don’t even have to remember! Just pretend, for like ten minutes once a month to care about what’s happening in my life.”He said he would.But I didn’t hear from him. Another year passed and Christmas, once again, was just a couple months away. I reached out and reminded him that if he couldn’t manage a monthly call, not to bother sending me an obligatory holiday text. He said OK, but nothing changed, and then my phone pinged on Christmas. “Merry Christmas to the best daughter!” the text read.The words were like stones in my stomach. I took a swig of wine and wrote back, “I told you what the deal was. You don’t get to reach out to me at the holidays if you don’t talk to me the rest of the year. It’s just too painful a reminder of what’s missing from my life.” He didn’t respond, and I didn’t hear from him again.But I did hear that he’d decided to marry the woman with the two boys. I wondered if he would promise anything to his new sons at the altar, and wondered if he would mean it.I erased Sonny’s number from my phone, Googled How to get parents removed from my birth certificate, and drank down the last of a bottle of wine. I thought about enrolling in cosmetology school, but decided to go to AA instead. I wanted to tell somebody, to ask for help, to cry, but didn’t know who to call. I was nobody’s daughter now.***
Zuzana. She existed in the middle of things, arriving as she did sixteen years after the first time that I had experienced true love and thirteen years before the place that I am now, which is alone. I am writing to you tonight from a one-bedroom walk-up which is situated directly across from a post office, roughly one half-block from a railway (but not a train station), and approximately two-tenths of a mile from the Lehigh River in Northeastern Pennsylvania. Nothing happens here, and the townspeople prefer it that way. On an April night when the weather allows for the windows to remain ajar, one can hear the neighbors coughing from a hundred meters away, just as one can hear the diesel blast of the tractor trailers barreling hard across the I-80 bridge. This is not a place where I would have envisioned myself, nor am I the person whom I would have envisioned myself as becoming. I am a shipwreck, and I have washed ashore here. To some extent, I have been subsisting in exile, even though I am financially secure (at least for the time being), and I have a meaningful job at a company that emphasizes the right things. For me, exile exists as a place where, to quote the poet and essayist Elisa Gabbert, “not suffering [becomes] a form of suffering.” My life is calm here, but I prefer the chaos. I seldom reflect upon the periods in my life when fortunes soared and stasis ruled the day.A bit of context. When I left New York City, I had no money and no prospects. I had been sober for five years; I had not dated anybody for four. During the summer of 2017, I took to splitting my time between Manhattan and the Poconos. In short order, I had been offered a full-time job in the Poconos area, and at about the same time, I had met a woman there, as well. In the job, I saw an opportunity for stability. In the woman, I saw an opportunity for escape. But, oh, how much of love is dependent upon slanted truths and omitted details? It’s that old story wherein one partner says to the other, “Do not move here on account of me,” and the other partner insists that he or she had been planning on moving there all along. Only this woman and I, we were not partners so much as we were co-conspirators. Our first kiss felt arcane. It felt like witchcraft, or perhaps the beginning of some unholy alliance. The two of us were sitting by a fire in the backyard of a lakehouse, and the October breeze came rolling in from off the water, and the embers crackled, and the two of us got high, despite the fact that I would rarely get high even before I had gotten sober. I made a pass, and this woman rebuffed me. Shortly after, she relented, but only if I would agree to take a sip of wine first. And so I did. If I wanted a second kiss, this woman contended, then I would need to smoke a cigarette with her. And so I did. At some point during that cigarette, this woman looked toward the fire and she said, “I’m gonna hurt you, Bob.” She said that with concern and she said it with forewarning, and I ignored her, and that is on me. By mid-November I had fallen in love with this woman, and I told her as much. She did not tell me that she loved me until two months later, when the two of us were lying in bed one afternoon. She had her back turned toward me, and she whispered the words as if they were an allocution, or a mea culpa. (She had admitted to sleeping with an ex of hers ten days prior.) Our relationship lasted from October until May, and there were several breakups in between. One night when it was all but decided, I went over to this woman’s house and we put her kids to bed, and we went downstairs and we sat in the living room and we watched TV. My heart felt light, and so I smiled, and this incensed her. “Whatever it is you’re feeling,” this woman said to me, “I don’t feel it.” – a comment that dug its nails into my psyche. When I went home, I wrote these words inside a notebook: People who are in need of saving should not develop a Messiah complex. It brings things low, and it breeds enablement. Our dismount was awkward, and it took place in stages. By early spring, the two of us were living seventy-five meters apart along the same street. We could wave to each other in lieu of texting. We could walk over to see each other in lieu of a phone call. Less than a month after this woman and I had called it quits, she took to seeing a woodcutter who lived one block away; a woodcutter who had also been the previous tenant in the apartment where I was the current lessee. I cursed the wind. I began to long for the city, where sorrow only lasts until one turns the corner. There are no soulmates in a metropolis. There are no soulmates anywhere, really. Soulmates are for platitudes. Soulmates are for small towns and bad fiction. Soulmates are for suburban stopovers where the talent pool is limited and where people marry for lack of knowing how else to proceed. In the wake of this affair, I felt unlovable, and, as such, I began to question whether I had been attempting to force love out of people before they could get up the energy to leave. I had a checkered past. I had objectified women. I had been a good boyfriend, but a bad bachelor, and it seemed as if all of that was beginning to pirouette its way back to me in streams.***
Nightfall, and I am looking out a tenth story window from inside the Hotel Richland. The Richland is located along the southern boundary of the Lower East Side. Tonight is Mischief Night, and I have been here for six days. I was initially scheduled to check out this morning, but I added an extra night due to a hangover, my second of this week. The first hangover was mild, and it occurred after a twelve hour binge in Greenwich Village. This second hangover carries with it a reminder of the old ways, of a melancholy that all but shrouded me throughout my thirties. I feel skittish. The only light in the room comes from the ghostly glow of the TV. I am wearing sweatpants and I have the heat turned up to seventy-two. There are fast-food wrappers crumpled up along an end table and there are breadcrumbs in the sheets. I have no cash left in my wallet. I withdrew $220 from my checking account during the overnight hours. This according to a pair of receipts.I feel spineless. I want to divebomb through this window. I want to sweep down low across the rooftops; I want to springboard over ledges. I want to glide my way through Chinatown, then veer left onto the Bowery, toward the colonnades, up through the arches, onto the bridge, where I can dematerialize into a ray of light that’ll cascade like so many particles into the river. I want that. I want to transcend. Only I am stuck here, a fool and his bad choices. I deal in self-deception. As such, I prefer to look out at things that cannot look back. Up here, there is no barrier between what is art and what is architecture, between what is progress and what is preservation. Up here, every bit of skyline is being bought up by the speculators. So many structures, a great many of them already living under the threat of demolition. Will you become a landmark or a relic? It is the quintessential question of aging. I can trace this back to its flashpoint, the glint of the muzzle. Toward the end of 2019, I began to allow myself a drink on occasion. I did this as a matter of ceremony after eight years off the sauce. Only now I am backsliding. I am giving in to the wrong impulses. I am wading into what are both bleak and terrestrial waters. Last night I turned a three hour outing with an old friend into a twelve hour trainwreck on my own. I have no wisdom to impart. I am not penning an advice column. The starch has faded, and my line has gone slack. I look forward to drinking these days. I spend two hours of every binge feeling charismatic, and then I spend the rest of those evenings chasing the glow. I am in the bars again, and being in the bars means barhopping, and, at least for me, that barhopping means a babbling stream of toxic chauvinism and wasted money and awkward rejections and shameful boasts. I lack control. The longer the night, the more compelled I feel to meet somebody, to end up dick-deep in some woman whose name I cannot recall. I pursue this not out of a need for companionship, but as a means of compensating for the extra hours spent desperate and semi-lucid and alone.Be aware that these are the fledgling stages, a series of unremarkable deviations. The skin loosens; the jowls sag. I do not lie so much as I omit details. I commit oversights. I go from running five days a week to running four. Minor variances, but they can lead to a place where the road narrows and there is nothing but the Valley of Gehenna below. I have struggled to reclaim my honor, and I have no interest in an about-face. I need to stop drinking. Nostalgia is for the discarded. Three days from today I will turn forty-nine, and as I enter year fifty, I have occasion to consider that the most gratifying period in my life took place between 2012 and 2016, an incandescent metamorphosis during which I was newly sober and entirely celibate and only sporadically employed, all while still living in New York. Those years felt like deliverance; they felt like nirvana. Those years felt like coasting through a sundrenched mist after a quarter-century spent charging into a headwind with a massive chute fused to my spine. I ate better upon getting sober, and I slept better, and I began to turn inward. I had divorced myself from the conceit that one needs a lover – or some ongoing bevy of sex partners – to make him feel whole. This past August, I received an email from an ex-girlfriend, Meghan, my first true love, and one of the two great loves of my life. Meghan and I were in a relationship from the spring of 1993 until the fall of 1995. I was young and she was younger, and we both had separate worlds we needed to explore. There was a breakup, and following that breakup, Meghan and I lost touch. For a time, I would hear things, that Meghan was doing well and that she had married well, and that she had settled long in Lancaster, Pennsylvania. Meanwhile, there was no way of knowing. I had gone looking for Meghan online, only to discover she had the digital footprint of a person who does not want to be found. But then there was this email, and at the heart of it, a question: Would I be open to Meghan coming to visit me in the Poconos? I was, which is to say that I had accepted. And, thus, one night toward the end of summer, Meghan and I built a fire and we ate outdoors, and we worked through a quarter-century of gasp and void. It was the beginning of something, a reclamation. It was an eleven hour conversation that did not ebb until the dawn. Meghan has been to visit me a few times since that night. Earlier this week, she came here, to the Lower East Side, and the two of us spent a couple of days together. We walked through Little Italy and Tribeca and Washington Square. We went to the Whitney and the Met. We had dinner at the White Horse Tavern, after which we attended the fiction writer Sara Lippmann’s book launch at P&T Knitwear. After P&T, Meghan and I disappeared into the Village, where we got drunk, a good drunk, a warm drunk, the kind of drunk that makes me wish that I was capable of doing things in moderation. Meghan grounds me, and I am spellbound by her. I should also mention that Meghan has been tremendous for my psyche. When things went sour with that woman who had cheated on me, I stopped believing in myself. I took a header into the dark south. Intimacy, or at least the physical manifestation of it, is like a drug. It is like a mainline cocktail to the soul, the sudden removal of which can create a vacuum. I did not want to overcome that emptiness so much as I wanted to avenge it. I wanted to meet somebody, somebody who was fierce and smart and accomplished and who could make me seem attractive by association. And I did meet somebody like that eventually, only when I did, I resorted to drinking because I thought I needed to. This cheapened me, not only in my own eyes, but in the eyes of everyone who had supported me. I could go on for another ten paragraphs. I could expand on the idea of love and its apparent station in my life. I could comment on the age of androgyny and the inevitability of an asexual revolution; of the cultural shift from time management into energy supply. I could tell you that I like to think about love as a way of honoring the principled people in my orbit, but that I also like to think of it as a form of integrity. I could bring matters full-circle by explaining how Besima and I have become the closest of friends, how I met up with Besima this past Thursday, and how we went to see a movie at the Lincoln Square 13. I could run deep along any number of tangents, but instead I would simply like to impart that my life, at its most profound, has been about moving forward. And that my fears, at their most paralyzing, have arisen from remaining idle for too long. Companionship has been a struggle, particularly because I am selfish and I have an overwhelming indifference to remaining on my own. That aside, I feel privileged to be able to sit here and look out across Valhalla on a Saturday in late fall. There is more. There is an ocean. But the room is paid for, and we’ve got time.****************
We don’t say terminal anymore, Janessa, my support group leader, says on one of our monthly Zoom calls. We say incurable. Because, you know, people can live a long time with this now. What doesn’t need to be said is that not all of us will.****************
In the months after I find out I have an incurable heart and lung disease, I spend a lot of time thinking about a man. All my journal entries mention him. I spend pages dissecting our FaceTime calls, the look he gives me when I say I have to go, his insistence that I call him right back, trying to mine for proof that he really loves me. That I am still lovable, despite this.*****************
When I met T, a few months before I got sick, I Googled his name. The first result was a missing person report from several years earlier, accompanied by a thumbnail photo of him smiling in a black sweatshirt. Last seen in the Pine Bluff area on October 31st, the caption said, anyone with information about his whereabouts please contact the Pine Bluff Police Department. I took a screenshot and sent it to my friend: is this a red flag*****************
The heat in my apartment went out for three days the winter I met him. It was as cold as a Minnesota February gets; I’d been sleeping in my heavy-duty down coat and two pairs of pants, creating a ring of space heaters around my bed. He lived an hour away, across the Wisconsin state line, but he told me he’d come lift my spirits and he did. It was snowing; we ate takeout tacos in bed, drank bubbly from the bottle, curled together under the covers watching The Sopranos on my broken laptop. My bedroom was all windows—nine of them—and I always said it would be the worst place to be if a tornado struck in the night. It was the best place to be when it snowed.*****************
T made it clear from the start that he was someone who could never be pinned down. The attraction was undeniable, but it was our conversations that thrilled me–a nonstop game of verbal ping pong. I remember thinking I could banter with him for the rest of my life and never get sick of it. At the end of a weekend together, I found a little baggy of mystery pills in the drawer of my nightstand—Valium, maybe, left there by another man—and offered them to him. He swallowed a handful all at once and left. A couple hours later he called me. I’m fucking floatingggg, he said. And that’s how I felt too. Like I was floating.*****************
T FaceTimes me from a hotel in Los Angeles. He FaceTimes me from a hotel outside of Ruston, Louisiana. He FaceTimes me while driving a Benz through Cherry Hill, New Jersey. In the wake of a breakup with another man, too sick to do much of anything, I’ve moved in with my retired parents. I answer his calls in my childhood bedroom with its teal walls that my sister and I painted when we were kids and our mom never painted back. I live my entire life between these walls now. You gotta get better, he says, so you can run around with me.*****************
Out of boredom I download a dating app, then delete, then redownload. I’m swiping past people who are doing everything I can’t do; looking for a woman who can be someone I’ll never be again. An adventure partner, a travel buddy, someone to hike the Pacific Crest Trail with. How do I tell them that the most adventurous thing I’ll ever do with them is meet them in person?*****************
I match with a cardiologist on one of the apps and when he messages me I say I wish my cardiologist looked as good as you and he says lol do you actually have one and I say yeah and he says oh dang do you have an arrhythmia or something and I say nah, pulmonary hypertension and he unmatches me. Relax, I want to say, it’s not contagious.*****************
I have to call an ambulance one afternoon in July, after the diagnosis but before the meds start working, because my heart is going berserk. 180 beats per minute and I’m struggling to breathe. Four EMTs show up to my parents’ house and one of them is the hottest man I’ve ever seen. In the back of the ambulance I accidentally flash my tits to all four of them while they’re hooking me up to the heart monitor. It’s SVT, one of them says to the others and then the hot one hands me a syringe and tells me to blow into it. We’re gonna go fast, the driver says, turning on the siren as we bolt through the streets of Saint Paul and I’m on a stretcher, blowing into the syringe, over and over, and the hot one tells me I’m doing great and squeezes my hand and I’m thinking am I going to die in the back of this ambulance and I’m thinking this is the most humiliating moment of my entire life and I’m thinking I wonder if he’s single.*****************
When I tell the men from the apps that I have pulmonary hypertension, after a perfunctory that sucks, I’m sorry their responses depend on whether or not they’ve heard of the disease. If they have, and they know a little bit about it, they invariably ask if I take Viagra (yes, three times a day) and if it you know…does anything (no, not in women). If they don’t know anything and I explain that it’s a pretty debilitating heart disease, they want to know if I can still engage in, um, activities (maybe, not with you).*****************
I read a New York Times article about dating with chronic illness and then I read all 277 comments. I’m looking for recognition, some confirmation that I’m not alone. In the midst of people proclaiming that essential oils cured their husband’s chronic Lyme and others arguing over the right time to reveal a disability, a woman with a rare blood cancer shares a story about a date she went on. When she mentioned to her date that sex was risky because an infection could kill her, he was convinced she was exaggerating. He told me he felt so sorry for me that sex could prove problematic, but never mentioned that he felt sorry for me because I had terminal cancer...it soon became apparent that he would rather have incurable cancer than not be able to have sex.*****************
I wonder if it’s best to play my cards up front, to let them know what they’re getting into before we even match. In my bio I write I have a terminal illness, looking for my A Walk To Remember arc. Then I wonder if this defeats the purpose; anyone who's seen it knows that in that movie Mandy Moore’s character doesn’t reveal she has leukemia until the boy has already professed his love for her.*****************
Over text, T and I reminisce about the bad emo music of our youth. He was a star football player in his small Louisiana town, I was a bookish Catholic school girl, shivering in my uniform skirt through long Midwestern winters, but our short-lived emo phases somehow synced up. Remember this one? He sends me a voice note, serenading me, screeching the words to Your Guardian Angel by The Red Jumpsuit Apparatus: I will never let you fall / I’ll stand up with you foreverrr / I’ll be there with you through it allllll*****************
We all have our baggage, my therapist tells me. I don’t think it makes you undateable. I’ve put on makeup, for the first time in weeks, to meet her in the portal. She starts talking at length about her husband’s struggle with addiction, about how you never really know what you’re getting into with someone anyway, because things change. I look past her, fixating on the unmade bed in the corner of her screen. If you don’t know, you don’t know, but if you do know, you can avoid it, right?*****************
I ask the girls in my support group what they do about dating. A lot of them are married and I secretly resent them, but a few of them are single. I don’t, K says with a laugh. She’s the one I relate with most: we’re both in our early 30s, both had to move back in with our parents, both got broken up with by our boyfriends when we got too sick. Maybe it’s possible to have a partner that sticks it out with you, if they love you enough, but getting someone to sign up for this, well, it’s just a whole different thing. Everyone agrees.*****************
T slipped out of my life as quickly as he slid into it, that first winter. By the time I heard from him again I had a new boyfriend and a mystery illness. I told him about both. Our friendship rekindled, but I kept him at an arm’s length, trying to dim the switch on that light that came on inside me whenever we talked. He was moving out east soon and wanted to see me before he left. I said no, I can’t, I’m with someone. When I started to feel the cracks in my relationship deepen, I told him that too. I don’t think he loves me, I said. Well I love you, he replied.*****************
In the aftermath of my diagnosis, I tell T that it’s been proven that women who become seriously ill are more likely to be left by their male partners than the other way around. That’s bullshit, he says, most divorces are filed by women. Not in this specific scenario, I say. Men don’t like to be caregivers. I sent him a link to an article about it; there's a picture of the baseball player Albert Pujols, who left his wife after she had brain surgery. That doesn’t count because he’s famous, he says. I say okay and send him another article about women with terminal cancer being left by their partners. You don’t have no cancer man, he says.*****************
Months earlier, while still searching for answers, I read Meghan O’Rourke’s The Invisible Kingdom, which chronicles her own diagnostic journey with a complex chronic illness. She talked about the shame, as an ill person, of needing other people so much, both in concrete, material ways, and in the need for recognition. I felt a profound sense of betrayal that he did not seem to feel the urgency of my suffering, she wrote of her husband, who rarely accompanied her to doctors’ appointments. It is hard to be the partner of someone ill, at once close to the problem and permanently on the other side of the glass from it. I read these words at night, next to my boyfriend, B, who was trying to understand, but who would always be on the other side of the glass.*****************
A month and a half before I got diagnosed, when I was too weak to walk up the stairs to my apartment and didn’t know why yet, B dumped me. It sounds bad, to say it like that, because by then I didn’t blame him. It was my idea. I could tell he felt trapped but was afraid to abandon me, so I gave him permission to and he took it. I was already sick when we met a year earlier and had spent a good chunk of our year together searching for answers—in the fluorescent light of dozens of exam rooms, in the test results tab of my MyChart app, in the archives of niche Reddit forums. Our whole relationship felt like a series of things I wanted to do, but couldn’t, while he hung around on the sidelines of my pain feeling helpless. We might have been right for each other if we’d met under different circumstances, if I’d gotten better instead of worse. But we didn’t, I didn’t. I was heartbroken for a week, and then I was too sick to care.*****************
In the week between when we decided to break up and when he moved all of his things out of my place, we had sex one last time. For closure. The whole time I wondered if it would be the last time I ever would.*****************
The thing that nobody warns you about having a heart disease is that it makes it impossible to **** ***, I tweet. I consider bringing this up with my cardiologist, but decide I would rather die horny than tell a 75-year-old man what my heart does when I get aroused.*****************
A popular Instagram fashion brand is advertising a tiny brass pill canister embossed with the word Viagra. The algorithm shows it to me over and over until eventually I buy it. Beautiful women take Viagra has become my little motto, my bit with friends and family whenever I pop one in their presence. If I’m going to be taking it for the rest of my life, I might as well own it.*****************
T tells me that before we can have sex again he needs to see me run a mile. Or do a power clean. Your choice, he says, but I’d go with the mile. Less blood pressure action. I know he’s joking, but I know there’s a deeper part of him that’s a little serious. Okay coach, I say. I don’t want to tell him that these things still feel so out of reach.*****************
Maybe, I think, the reason T is so important to me is because he was the last person to meet me when I was still healthy, the last person who would ever get to know the version of me that could pop a bottle of champagne after midnight and drink the rest on a lazy Saturday morning, the version with energy and verve and dreams for the future, that could plan a trip to Palm Springs on a whim, that didn’t have to take supplemental oxygen on the plane, that didn’t have to take pills four times a day just to stay alive. The version that could get high without sending my heart into overdrive, that could fuck without sending my heart into overdrive. That could do a power clean, or run a mile, and not think twice about it.*****************
By late August, the meds are starting to work. I can go on walks again, slowly, in the sticky heat. Senator Amy Klobuchar tweets a picture of herself at the Minnesota State Fair, posing with four shirtless firefighters. State Fair pro tip: You don’t want to miss the Minnesota firefighters. The post has millions of views. One of the men in the picture is my EMT, the hot one. I send it to my group chat and nobody can agree who the hot one is. I think it’s obvious.*****************
In the fall, I suggest to T that he visit me. I haven’t seen him in well over a year, but lately we’ve been talking all the time. He hems and haws and eventually gives me a half-hearted excuse about feeling as if I’m only talking to him because I’m bored, because of my situation, and that if my life hadn’t slowed down like this I wouldn’t even look his way anymore. I can see through it, and I press him, until eventually he admits that my lack of mobility isn’t compatible with his lifestyle of spontaneity and constant travel, that we could never be together because of it. I’m gutted, angry, ashamed. Most of all, as much as I want to believe he’s wrong, to change his mind, I know there’s some truth to his words.*****************
T was there; when I knew I was sick but everyone else was starting to suspect I might just be crazy, he had a plan for me, an investment in my recovery. Stop eating this, start eating this, everything from scratch, spring water only. You don’t have room to slack, he told me. I rolled my eyes. Deep down, though, I was grateful that someone cared enough to want to help, to not just shrug their shoulders like my doctors had been doing for months. And when my MRI report said myocardial fibrosis and right ventricular hypertrophy and I landed in the hospital, when I lied flat on an operating table with a catheter in my heart and saw the grave expressions on my doctors’ faces, when he texted me how did today go lil mama, when he called me immediately after I told him, when he looked like he might cry on my phone screen, I felt it. But there’s a limit, I’m learning, to what some people can bear.*****************
I long for a love that is not contingent on how well my body is working, one that understands how this illness makes both spontaneity and planning ahead more difficult, that celebrates the wins and grieves the losses alongside me. In one of my pulmonary hypertension groups, a man is posting updates about his wife’s double lung transplant recovery. She’s up walking today! or Well, we had a bit of a setback. I wonder about my future, if I’ll ever need one. I wonder what it would be like to go through it alone.